Your Pocket Guide to Understanding and Managing Hypermobility and Ehlers-Danlos Syndrome

The Not-So-Rare Invisible Illness Hiding in Plain Sight and Underlying a Plethora of Symptoms

Ehlers-Danlos Syndrome (EDS) is a complex connective tissue disorder with multiple subtypes, each with its own genetic roots and clinical features. This article explores what EDS is, how it’s diagnosed, and the challenges of managing its often debilitating symptoms. It will cover the various subtypes, common comorbidities, treatment and symptom management strategies, and examine how emerging theories like RCCX and nutritional deficiencies may help explain the overlapping conditions frequently seen in EDS patients.

What is EDS?

Ehlers Danlos Syndrome (EDS) is a genetic connective tissue disorder that primarily affects the skin, joints, blood vessel walls, and the intricate structures of our organs. The hallmark features include joint hypermobility, unusually stretchy or fragile skin, and a tendency to bruise easily. Though symptoms can vary widely in severity and type, EDS often causes chronic pain, frequent injuries, and other systemic complications.

While currently EDS is primarily thought to be caused by genetic mutations, emerging research suggests that environmental factors such as toxins and nutritional deficiencies may also contribute. The condition involves changes in the body’s production or structure of collagen - the most abundant protein in the body and a crucial component of bones, skin, muscles, fascia, tendons, ligaments, cartilage, and organs.

Collagen is the glue that holds our body together.